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knot

I started a week ago driving from Detroit to Meghan’s cottage in Tobermory, Ontario. Its without a doubt not getting any easier the further I get from Meghan. The cottage is absolutely her favorite place on earth. It’s where she went to recoup and relax, to sort things out and to spend time with family. We spent every one of her birthdays there as long as I knew her and I’m fairly certain, every single one before I knew her. It was also where we were going to have our big wedding ceremony and reception. I knew what I was getting myself in to by going up there, but I also knew the pain would be slightly buffered by having our close friends with her family and mine this past week. None of this is getting any easier.

We spent the weekend doing things Meghan would’ve wanted to, playing board games, canoeing, drinking and talking. Saturday was the hardest. That was supposed to be the day of our ceremony. I spent as much energy as I could trying to keep my mind occupied and not think about it. I can’t decide what hurts more, to avoid thinking about something you know is there or to fully accept it for what it’s supposed to be. To pretend that everything is normal and that Saturday didn’t mean anything because it’s just another Saturday, or to take it head on. Go and sit under the tree where Meghan kept her hammock and where the ceremony was going to be. Let my imagination go and think about how she would’ve looked or how the day would’ve gone. I chose the former although im not convinced it was the wisest choice.

We went into town and wandered around for a bit, took pictures and in general tried to enjoy ourselves. We went to the lighthouse and saw a couple taking wedding pictures with all of their friends dressed up and milling around. That was pretty hard to see. Being jealous of people’s happiness is a strange thing to go through. It felt unfair. It still feels unfair that Meghan never got to be that girl having her picture taken in her amazing dress. I hate that I couldn’t make that happen for her somehow.

For me the trip took a nose-dive after that. It was so much fun and so great to have our friends there, but I couldn’t get over why we were there and what that week was supposed to mean. Everything hurt. Everything I do reminds me of, or makes me think about Meghan. I miss her so much. I want so badly to feel her next to me or just to hold my hand. I would give an appendage or any possession just to know and feel that she is still here in some capacity with me. So many friends and family have these experiences where they’re convinced the animal or butterfly or star is Meghan signaling to them that she’s still here, still a part of all of this. I would literally give anything for that. Just to feel and know in my heart that tie isn’t broken because
she isn’t physically here anymore. Anything. I don’t want to lose her or forget the small things about her that no one else knows. I want to stay attached. I want a deer to walk out of the woods and put something in my hand or for once in my life have a dream that I remember or one that has meaning where Meghan tells me something important. I’d love to believe in any and all of this. I’ve looked for reasons to believe this, but nothing happens ever. I still sleep poorly. I don’t have dreams that I remember. I don’t have amazing encounters with wildlife or nature or people. Everything continues as it was. I waiver between being depressed and trying to pretend that I’m fine and don’t feel anything.

All of the friends left late Sunday and I spent the rest of my time doing things alone. I went for a really great hike that I did two years before with Meghan and her family to a secluded swimming spot. It was definitely refreshing mentally and not altogether sad. Its hard coming to terms with being alone. Its like these things we used to do are somewhat nice but don’t really bring me any closure or closer. I have to move forward and move on to come to any sort of
rationalization of everything that happened. If I stay where I am, or where I was, Ill never be able to deal with it all.

I left the day before Meghan’s birthday mostly because I was scared to be at the cottage for it. I knew I couldn’t handle her not being there, not waking me up in the morning to play scrabble with her or giving her presents or having her grandmother sing her happy birthday. That’s been the hardest part, the things that should be. The big and the small that Meghan should still be here for. We spent her birthday doing things that she liked to do around St. Catharine's; exercising, drinking gin 'n tonics, hiking, Japanese food, her favorite pub and then going to bed early. It was somehow easier to not be sad there. The place was still full of memories of and with her, but this was easier than the cottage. I'm not entirely sure what the difference is.


I left the following morning to drive to New Jersey to pick up a friend and then head down to my home in DC. I felt like a character in a Kerouac book. A seemingly random long list of events and people that blur together and never lose speed. It just keeps going. This is endless. The world keeps going. It never slows down because of how sad you are or how awful something that happened to you is. You don’t get breaks. You can’t rest. Fighting the current only makes you want to give up, it makes it all seem hopeless and worthless. You have jump in headfirst and without a paddle. I think Meghan understood this and that’s what kept her going. She knew slowing down, stopping, or wallowing in despair would only wear her out and keep her from her
goals. She didn’t stop because she knew going against the grain was worthless in this respect. It's important to embrace these seemingly impossible things in life. It's important to set your sights well beyond what you think you’re capable of accomplishing. Achieve a goal and make the next step twice as big as the first. Don’t save any energy for the return trip. There might not be one.

Feedback

I really want to make sure that everyone feels involved in all of this. If I don’t know you already I would like to meet you at some point. I think everyone has a story to tell and there own reasons why Meghan affected them the way she did.
The way she dealt handled extreme difficulty, (seriously understating it) with grace, dignity and complete and raw honesty will forever change the way I handle things in my own life.

We are compiling this information to put together an article in the Toronto Star. I want to hear from you. I want to hear how she changed you, made you feel comfort or simply altered the way you think about disease.
Please, post comments, with your full name underneath. Email me at fortheloveofmeghan@gmail.com or Fabiola at fcarletti@thestar.ca

All of you are involved in one way or another and I appreciate the simple fact that you read Meghan’s words. Today is the longest day of the year; there is plenty of time today to do something impactful for others.

work hard, be smart

The Current city is Chicago, which is great and different. You can bring your own beer to restaurants and your own food to bars. It’s bizarre and wonderful. Again, the notion of progress is at the front of my mind. Everyone has a different definition of that word and up until recently mine was a decision followed by immediate action. A complete lack of planning with everything depending on the process and the outcome was often not what I had hoped for.

Setbacks are surprisingly common with a lack of planning. For some reason I’ve been watching travel and adventure documentaries non-stop over the last two days (fine, I realize that link is pretty transparent and obvious,) and the lesson, the point, the rule that I keep coming to is that nothing of value comes to you easily or quickly. The culture I grew up in was one of trying to get as much as fast and as easily as possible. Work smart not hard.

It’s almost anti-human in a way. You spend your entire day sitting, often doing intangible work for pay that you never actually see. Everything is done via wire. Don’t get me wrong; I love technology, LOVE IT. I foam at the mouth every time Apple makes something new that promises to make me a better person. But I think I’ve lost the plot.

I’ve been missing out on a lot of learning because of a serious lack of exertion. Meghan completely understood the meaning of hard work. She understood what one gains from the amount of effort put in to something you don’t necessarily care about. The process is completely important. The struggle is where you find meaning and truth. Not the finish. Meghan never had a problem throwing herself into something that was difficult. She wouldn’t bat an eyelash at work. Real work. Real effort. Her mother told me about the time when she decided to go to University. She would come home from High School and spend the rest of the day at the dining room table pouring over textbooks to ensure her entry to the school of her choice. I spent high school taking naps and barbequing. Meghan graduated in four years from a difficult program at a great school. It took me six years, two schools and three different majors. I didn’t know what I wanted to do because I didn’t do any groundwork. And I get that now.

I’m becoming more comfortable making plans that are three months, six months and even a year out that I’m going to stick to and not waiver. I understand there is progress in a simple conversation with the founder and director of the Merasi School in India. I’m not leaving tomorrow or next week but I know that just talking to her and having a connection means something. Making a budget is progress. Running three times a week is progress. Talking to people about Meghan is progress. Knowing that Meghan would be happy with my progress is progress. Continually learning from Meghan is progress. Thank you, Meghan, for being the biggest and best part of my life. I will be eternally grateful for all of the lessons and the life to come.

Further proof that Meghan was dedicated to her work; this past saturday, June 12, 2010, Meghan was awarded the Personal Support Worker Certificate posthumously for the program she was enrolled in last winter. There was never a question she would have finished at the top of her class. As her father walked across the stage to accept her certificate, Mr. Baker and Meghan were met with thunderous applause from the thousands in the arena.

Worry Not

I’m having a lot of trouble slowing down or not doing anything. I don't like not having plans and things to look forward to. I don't like being sedentary; I don't like having to wait. I think I'm scared of being alone with my thoughts and having too much time to sit and think about everything. I’m pretty scared of what's in my head and I think I try to distract myself as much as possible from it. June and July are scary for that reason. I don't really have that much going on in either. I have a lot of waiting to do and a lot of alone time coming up. I’m not sure if that's a good thing or a bad thing. I’m not sure if its good for me to sit, just sit, and think and let all of these memories and thoughts come. I don't really dream so its not Iike my subconscious is processing anything at night. I’m scared to sort things out, knowing that I'm sorting things out. I don't want to process Meghan. I don't want to lose any of it or move on or leave parts of her behind. I’m ok with talking about her, I don't get choked up or overly sad when I talk about who she is to me and what happened to her. I’m ok with that. I just get upset at the notion of forgetting. I don't have an outlet anymore.

She was my subconscious. She was how I worked through everything every day. She was that voice in the back of my head telling me I'm an idiot for wasting money on really dumb things (anything with flashing lights or buttons.) She was the first person I went to when trying to make nearly every decision. It feels like half of my thought process is missing. Like we finished the puzzle together. THE puzzle. Now half of that puzzle with it's crazy intricate pieces that could only fit in exactly one way is gone. I can’t redo that puzzle. I cant push other pieces in its place or make them fit. Even if I could I don’t want to.
Honestly, I don't know what to do. I don't know how to make myself better. Half of the time I don't want to be better. I know she would handle this a lot better. We all know how strong she could be. She would be there for other people and make sure they’re taken care of. She would be the last person she’d worry about.

Maybe this is my subconscious working. Maybe I know without knowing? Not ten minutes after she passed away I knew I had to finish her goals. And I think I knew that not so much because they were her goals but because of what they were. Almost all of them are altruistic. She knew that. She knew that there is a lot of personal gain in serving others. She knew that there's a lot of time, alone time, on a train across Canada. She knew there is a lot of love and support exchanged equally from doing things with her friends. She knew there is much wisdom to be gained through reading and teaching one's self new things. All of these goals, things, and steps along the way are keeping her memory alive and helping me to process the loss of her.



a friend wrote this in response to my editing request which I thought was especially helpful and real and honest:

Of course this makes sense! It's hard not to feel like you're repeating yourself when your mind is constantly on.... on replay, re-do, reject... rewind. There's this sense of undo... to allow yourself unwind, but the fear that that will take place in the most literal sense. That sense that if you do finally stop, even if for a second, you will just come undone.
The momentum of this project and the idea of pressing on with what would make Meghan proud is an extreme momentum. But like anything else in the world, there is no constant forward. There is always a lull ans always a moment of reflection and doubt to wade through, to get to the next froward step. You are making great strides, both in this project and in your personal grief. I'm sure Meghan is seeing you in the same light she always has and I'm sure she's impressed. How could she not be? Sure, she may have handled the flip side of all of this differently, but she has given you such vision that this is not something you would have thought of doing if it weren't for her. You can't blame yourself for not responding to all of this the way she would have. You are YOU and that's why she loves you. I know it isn't much comfort, but this IS a really epic way of handling your loss and the LAST thing it will do is push her memory further away. If anything it keeps her closer to you than your own skin. You seem to have a better grip on what her mindset would be than your own. It's terrifying, the idea of "letting go", like to do so would force you to feel all this all over again. When we allow ourselves to fall so deep in love, it's hard to see anything else. When it goes, it's much like losing limbs, your heart and having a stroke all within a painfully real dream. There's a fuzzy quality to it all, no matter how bad it hurts or how bitter it tastes.
It's ok to have things to run to, as long as you ensure that you're not running away. I know the idea of being still causes a lot of anxiety, like there's a wave the size of a skyscraper waiting to crush you as soon as you stop. The talking is the easy part. You say the words so many times they start to feel scripted, like someone else wrote it and you're just here to recite it..... hackneyed, over-used and distant. Most of the time I can talk about my step-dad without crying, in fact, I laugh a lot and have almost always been able to. There's something about telling the story, sharing that makes it bearable. Like if you say it over and over than the whole experience loses power. I think that a lot of the mourning we go through is mourning the future and all the plans we had. That stuff is so big and border-less it's hard not to miss it, even if we never had it to begin with. This is why we set ourselves up to look forward to new things. Trips, plans, projects.... it helps us see a new future. It's fine to do these things, as long as you know that they are only band-aids for the grief that will still come in the quietest hours.
You dream whether you know it or not. But your mind is quick to smooth away the things you have told it you're not ready for. You don't have to let her go, ever. No one would ever ask that of you. Don't be scared of what you might hear or feel when you're alone. Although, you need to be able to remind yourself that the darkest things you feel are not nearly as heavy as the weight of what Meghan means to you and how this project will keep her as big and as bright as she's always been. It's only in the darkest nights that the brightest lights can be seen.
THE puzzle. You have to remember that we don't always know what the puzzle is until it's finished. Meghan is a huge portion of your puzzle, but not the only portion of it. Nothing else is MEANT to fill that space. There's a whole other side that waits to be finished and everything you're doing is going to help you find the rest. There are so many places to go and people to meet and people to help. There are drinks and laughter, too. You said before that you thought your relationship with Meghan was mostly to your benefit and maybe this is all just another way for her to help you. Sometimes people help us feel stronger, more complete and safe. Like we'd never met ourselves before and like we couldn't go on without them. But sometimes, they come into our lives to help us see that we'd been that strong, complete and safe all along. They help us see life for the beauty that it is, even if it seems like the shine has worn off a bit once they've gone.
I wish I could streamline this for you. Make it easier or clearer. But it seems to me that Meghan would remind you that there is a lesson in all of this. I know it all weighs a million pounds even if the whole experience if full of holes. So lift what you can and remind yourself that the higher you lift it, the more all the excess will pour through it like a sieve. I know you don't want to get through it sometimes and that's because in all of this, your grief is your own. There are a lot of things on your future, some things you can control and a lot you can't. So let it come. Let pass through you too. The less resistance you have, the more easily it starts to make sense. The worst has already happened, there's nothing else to fear.